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Chat with others about dyspraxia and share your experiences.

Postby maz » Fri Apr 23, 2004 8:57 pm

hello, my name is maz and i have only just found this great site, my son ben is seven years old and recently been diagnosed with dyspraxia. He's a great kid cheerful funny and bright but we noticed he had some differculties, whilst watching a morning programme i saw a interview with two boys , i listened to thier stories and was amazed how similar they were to that of my boy, before then i had know idea about dyspraxia, this resulted in ben being diagnosed we are still learning about the condition and are eager to help him as much as possible. we havent told ben about dyspraxia and i was wondering if anybody could give me some advice on when to tell him and how. I would really appreciate it. I think this site and dyspraxia awareness day are wonderful they help people who otherwise would struggle on their own. thanks maz
maz
 

Postby Guest_benjnottingham » Fri Apr 23, 2004 8:58 pm

Hi Maz,
welcome to the board. I find out I had dyspraxia when I was about 6 or 7, I've got mild & verbal dyspraxia and I'am an member of Dyspraxia Connexion (Nottingham based group) & the Dyspraxia Foundation. I hope that Ben gets on well at school & doesn't let his dyspraxia get in the way of his school work.
Ben J :)
Guest_benjnottingham
 

Postby Guest_Helen » Fri Apr 23, 2004 8:59 pm

Hello Maz,
We decided to tell Matt as soon as we had a diagnosis. We sat down with him and talked about some of the difficulties he felt he had, then told him that these were not because he was useless or lazy, but that there was a reason for his struggles. We found once Matt realised this and understood a little about dyspraxia, he was more able to cope and got less frustrated. The Dyspraxia Foundation produce a booklet aimed at children, details below;
<span style='color:red'>Discover Yourself - £2.50 (non members), £2.25 (members)by Gill Dixon. A book aimed at 7 - 10 year olds with dyspraxia.</span> You can down load an order form and find the details at this address. <a href='http://www.dyspraxiafoundation.org.uk/dyspraxia-shop/booksavailable.html' target='_blank'>http://www.dyspraxiafoundation.org.uk/dysp...savailable.html</a>
I can recommend it as we used it with Matthew and it helped him understand dyspraxia. I always feel that honesty and openess is half the battle....the other half is knowledge of the condition. Once armed with this you can deal with anything!
Maybe you could sit down with your son and read through Matt's dyspraxia pages. Always remind him he is not alone and that others have dyspraxia too and understand how he is feeling.
Hope this helps.
All the very best,
Helen
Guest_Helen
 

Postby Dyspraxic Fantastic » Fri Apr 23, 2004 9:00 pm

Hi Maz,

The most important thing is to be honest with Ben about his dyspraxia but try to tell him about it in as simple a way as you can.

Reassure Ben that he has a unique and special mind. Everyone is good at some things and bad at others and he is no exception. There will be things in life he will find easy but there will be things in life he may find inpossible, through no fault of his own. Dyspraxia affects the way the brain processes information which may result in messages not being transmitted. He is not stupid, dyspraxics can have above average IQs and he is definitely not lazy, dyspraxics often work harder than everyone else so they can keep up. Lots of dyspraxics are determined, caring, hard working, imaginative, resilient individuals.
Dyspraxic Fantastic
 

Postby Abby » Fri Apr 23, 2004 9:00 pm

Hi Maz.
This is Abby. I am 20 for 5 more days (I'm nearly 21). I am mildly dyspraxic and I got a self diagnosis at the age of 18. My parents always knew I had learning difficulties because the specialists said so but they weren't quite sure what. They mentioned Dyspraxia but didn't give a second thought and weren't sure if it was. A special needs teacher said it could be when my Mum asked do you think she could have Dyspraxia? My Mum diagnosed me when she had read a Guide article and pointed to it and said that all these things pointed to me. So, now I am getting on with life and taking on what comes with problems of every day life. It was hard to except what I had but I've accepted it's there now.
Abby
 

Postby maz » Fri Apr 23, 2004 9:03 pm

;) thankyou to everyone who replied to my question, it has helped me and i've ordered the leaflet Helen recommended. I have also ordered triangular pencils from the dyspraxia foundation, has anybody used them? and did you find them helpful? my son Ben is doing fine at the moment and has just learnt to ride his bike so ofcourse we are all very happy about that, we are just helping his brother to get his confidence on the bike now. Last time we saw the peaditrician for Ben they said they would refer him to an occupational therapist and someone to help work on his self esteem so far we've heard nothing, i suppose it can take awhile. I'm a little frustrated that although his teachers have recieved letters from the doctor they still don't seem to understand. when i mentioned to his teacher the improvement in his handwriting she said they just know how to nag at him better, i wonder if they take it seriously. anyway im rambling on now and boring myself to sleep so i'll speak soon take care everyone bye. maz
maz
 

Postby Guest_Helen » Fri Apr 23, 2004 9:03 pm

Hello Maz,
Hope the booklet helps you and your son. Matt used triangular huggers which fitted onto a standard pencil and they did seem to help him to hold a pencil better. Good luck with the triangular pencils.
Well done to Ben on learning to ride his bike. :lol: It is a great feeling isn't it, when they crack it and can be just like all the other kids.
Stunned by the attitude of Ben's teachers (although I don,t know why because it is not so unusual!) Have you printed off one of our leaflets? They were written specifically for primary school teachers, so it may be worth taking one into your son's school. Sounds like they need one! How long is it since you were told Ben would be referred to an occupational therapist? if you feel it is taking too long for them to contact you, it may be worth contacting the paediatrician and letting them know you rae concerned you have heard nothing and give a gentle reminder that you are still waiting. Polite, but firm nagging is the only way with hospitals and schools. Ben needs help now and should be getting it now.
All the best. Let us know how you go.
Bye for now,
Helen
Guest_Helen
 


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