Caged In Chaos

Chat with others about dyspraxia and share your experiences.

Postby k9ruby » Fri Mar 04, 2005 6:20 pm

:D she likes it too! ;)
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Postby Helen » Tue Mar 08, 2005 11:42 am

We still do not have our copy:(
We pre-ordered through Amazon.co.uk, months ago, the very day you announced it was available to pre-order, but they have let us down badly. Darren has had a moan and they have apoloised and given him a £5 gift certificate. But all we want is the book. We have been advised they expect to dispatch it on 16th March, which is Matt's birthday, so perhaps that is a good omen :)

Is it next Monday, 14th March, that you are on Richard and Judy? Watched last night, but no sign of you ;)

Helen x
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Postby slinky_malinki » Tue Mar 08, 2005 5:16 pm

Yes, it's this coming Monday that I go on. My Head of Sixth Form is still annoyed that they have not sent my travel details, as we have to arrange someone from college to go with me. Travelling alone isn't a sensible idea when you hate crowds and get lost easily! Everything seems to be done at such short notice in this game.

I'm sorry that you haven't got the book. :( My local bookshop has several copies in stock, as all my schoolmates have been going in and badgering them for copies. I don't understand why Amazon are taking so long if the bookshops are able to obtain them within a few days. I hope you enjoy it when you do finally get your hands on it!
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Postby SomeT1 » Tue Mar 08, 2005 7:09 pm

I got told mine was dispatched on the 5th of march from amazon, and I pre ordered it ages ago, and it still has not come. Do you think I should complain?
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Postby Helen » Tue Mar 08, 2005 9:32 pm

I got told mine was dispatched on the 5th of march from amazon, and I pre ordered it ages ago, and it still has not come. Do you think I should complain?

If the book has been dispatched then the delay may be down to the post office now. Give it another day or so, then have a moan!

We received an e-mail from Amazon today.......apparently our copy was despatched today. We only live a few miles from the Amazon distribution centre, so hopefully it will arive tomorrow or Thursday. Can't wait......bursting!! :D

Will be tuning in on Monday Vicky.......all the best!
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Postby slinky_malinki » Tue Mar 08, 2005 10:27 pm

I know some people have received their books from Amazon! A stranger has read it and posted something about it on the Dyscovery Centre's message board, which I look at occasionally:

I ordered the book from Amazon when I read the article & read it in one go. I found it funny, sad, thought provoking. Some of the lists were a bit trite e.g. how to atttend at a job interview from a 16 year old inevitably was not as interesting as some of her experiences. My 13 year old dyspraxic son was browsing through it as well.

I was tempted to post a message asking if this otherwise nice lady knows exactly how gruelling interviews at the University of Cambridge actually are (I based my tips on my experience there) but hey, you can't have everything!
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Postby Helen » Wed Mar 09, 2005 9:19 am

That is an encouraging review, apart from the part that suggests 16 year olds do not have an understanding of job/university interviews. I wonder if the lady has missed the point, that although you have dyspraxia, which causes you difficulties, you are not the average 17 (soon to be 18) year old. On this board, we have come to know you and we understand that you have an intelligence far beyond your years and an ability for writing that is to be envied. I would come to you for advice and I am 36! ;)
We should not dismiss the knowledge or opinions of young people - we should embrace them and learn from them.

Waiting for my postman this morning and hoping that he has a certain package for me! :)

Enjoy your success, Vicky and know that I for one have great admiration for all you have achieved. I am proud to know you through this site. :)

Helen x

PS I have been reading your online diaries. I cannot believe Durham turned you down! :o
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Postby Helen » Wed Mar 09, 2005 9:58 am

It has arrived! :D
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Postby Helen » Wed Mar 09, 2005 11:57 am

Vicky,
What can I say?

Caged in Chaos is truly amazing and well worth the wait. I have had a wonderful morning with your book - your wonderful sense of humour made me laugh, the poignancy of your writing and the brilliant contributions made me cry. I knew it would be good, but you have exceeded all my expectations. Thank you!

Helen x
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Postby slinky_malinki » Wed Mar 09, 2005 6:56 pm

Thank you so much, Helen. I am glad you liked it - your opinion is especially valuable to me because of all the visits I have made to Matt's site. I really hope it helps people.

I did have some bad news today, however - Richard and Judy producers cancelled the interview. According to my publishers, a show called This Morning has offered to take over where R&J left off. Apparently they are being quite enthusiastic, but nothing has been arranged yet. My head of sixth form got the impression that Richard and Judy only wanted me as a sort of standby show-filler, in case they couldn't get anyone with more fame attached! This makes sense, but if I ever write a few successful novels in later life and get invited on again, I may casually mention their contempt for my early works!

But if the book hits its targets I will be very happy. I am terrified that it will be sidelined by books written by the doctors and specialists; I hope that lots of teenagers find it.
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Postby Helen » Thu Mar 10, 2005 11:34 am

I did have some bad news today, however - Richard and Judy producers cancelled the interview. According to my publishers, a show called This Morning has offered to take over where R&J left off. Apparently they are being quite enthusiastic, but nothing has been arranged yet. My head of sixth form got the impression that Richard and Judy only wanted me as a sort of standby show-filler, in case they couldn't get anyone with more fame attached! This makes sense, but if I ever write a few successful novels in later life and get invited on again, I may casually mention their contempt for my early works!


It is a pity that the R&J show have decided against interviewing you. Hope that This Morning do not let you down(and all those who have dyspraxia, live with or work with dyspraxic people and MUST hear about this book, so they can buy their copy!)

Let us know whe you have a firm date for your star appearance and we shall be tuning in. If it all goes ahead, perhaps we could video it and then stream it for this site and the teens site, for people who could not tune in. Would this be ok with you?

I have been sending the Dyspraxic Teens link to a few major dyspraxia sites to ask them to put links to it. The Dyscovery Centre and the New Zealand dyspraxia site have replied and are happy to add a link. judy from NZ was very excited about the site and is going to pass the details onto their teen group and put them in their newsletter.
No reply from anyone else yet, including the foundation. Watch this space....
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Postby slinky_malinki » Thu Mar 10, 2005 3:33 pm

Does the Dyspraxia Foundation have something against teenagers?

I wrote to them ages ago asking if they would be able to put me in touch with some other adolescents who might want to tell their stories in my book. I had to send a second e-mail to sting them into giving a response, which stood as follows: "Some of our teens aren't able to read, so such a project would be difficult for them."

I hope that sentence reflected the view of the person writing the e-mail, and not the standpoint of the Foundation itself. It is no wonder that people with dyspraxia have low self-esteem when everybody remains convinced (in the nicest possible way) that a learning impairment gets in the way of your goal. It's very strange.
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Postby Helen » Thu Mar 10, 2005 3:58 pm

Hi Vicky,
I am sorry to say that I have been non too impressed with the support and help offered by the Foundation to date. They were not helpful to us at a time when we really needed it and I have heard from several others that theri experiences are similar. When we contacted them about our Dyspraxia leaflet, we recieved no acknowledgement either. :( The only good thing that has come out of their apparent lethargy to support those who turn to them, is the birth of Matt's Hideout and the teens forum. Matt received no help and we could only find limited information, after Matt was diagnosed so we made it our aim to reach out and inform others. I hope that we have succeeded in some small way. :)
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Postby slinky_malinki » Thu Mar 10, 2005 4:04 pm

'Some small way'?

This website must be in the 'favourites' column of thousands of Internet browsers around the world! The chairlady at the new special needs centre in Saudi Arabia has translated parts of it into Arabic for the children to read. Matt's words mean far more than the Dyspraxia Foundation's list of symptoms, because they come from personal experience and they strike a chord with dyspraxic people everywhere. His personality also colours the site, which is a good thing. Who wants to feel like a sufferer, a symptom, or a statistic?
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Postby k9ruby » Thu Mar 10, 2005 4:56 pm

My mum wasn't too impressed either :ph34r:
there site is half hearted and is all about proffesional s wanting to read outdated info!

Shame about R&J!! :( :angry: :angry: :angry: ARRRRRRRGGGGGGHHH!

good luck on TM though! would it be possible to convert it into a video clip on MHO ?? Matt, would you be able to do this? (i know u have before with the radio and look east clip!)
:D
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