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Chat with others about dyspraxia and share your experiences.

Postby Guest » Tue Apr 27, 2004 1:21 pm

I have come across your site by accident and i am amazed to know that there are so many people in the same boat as me.
My son Jordie is coming upto 7 and i ahve been fighting to get him diagnosed since he was 3. i would appreciate any advice on what route i should take nex.
He failed his 3 year assessment on co-ordination, concentration, balance and speech, the health visitor said that he was typically dyspraxic and liased to with nursery to see what he was like at school. Unfortunately nursery felt that he did not have a problem and the matter was dropped.
When he started full time school, it was apparent that he did have learning difficulties and the school nurse and educational doctor assessed him and suggested that he had behavioural problems and that it would perhaps help if i cut the apron strings and stopped mothering him so much. Then i took it upon myself to get him assessed by a child specialist who said that Jordie was just being a lad and that he'd catch up eventually.
Jordie will be starting junior school in september yet he is is still on the same reading books that he was on 2 years ago. His writing is either incredibly neat but small or very messy and unreadable. He struggles in every subject, his drawings are very immature. One week he can be top of the class in his spellings test but the next week he has forgetton everything and you have to teach him all over again. It feels that he is uncapable of keeping anything in there long term.
I collected him from school yesterday and his teacher (who is the special needs teacher in his school) told me that we really need to get him help, the longer we ignore it, the further behind he will get. I collected him a while back, to be told that he had spent the day crying because he wanted to be like his friends.
I just don't know which avenue to take next and would be extremely grateful if anybody has any ideas. He isn't being bullied yet, but with him starting junior school soon, i know its only a matter of time.
Thanks for reading
Sarah Riddell
(Derbyshire)
Guest
 

Postby Helen » Tue Apr 27, 2004 6:09 pm

Hello Sarah,
Firstly welcome to Matt's forum and thank you for sharing Jordie's story with us.
I think you have two options in trying to obtain an official diagnosis. The first involves the co-operation of the school. As the SENCO is Jordie's class teacher and she has identified that Jordie is having difficulties, then it may be worth pursuing the matter with her. Ask for an appointment to discuss your concerns and ask her to detail the problems she feels Jordie has. Find out what help she can give Jordie within the classroom situation and whether he can be placed on the special needs register. If he is put on the register, the SENCO will produce an Individual Education Plan (IEP), where details of Jordie's difficulties and strategies to help him will be detailed. Ask the SENCO if she can action an assessment with the Educational Psychologist. The EP can refer to other parties such as physiotherapists or occuaptional therapists. Your aim should be to have Jordie statemented, so that he becomes entitled to all the help and support he needs.
Your second course of action is to ask your GP to refer Jordie to a paediatrician....this will hopefully lead to diagnosis and referral for an assessment by physios and OTs. when you visit your GP be sure to mention all your concerns and be ready to describe the difficulties Jordie has at school and in his general activities of daily living.
If you decide to take the GP route it is still very much worth pushing for all the help the school can provide. Jordie clearly has difficulties which are already causing him problems at school so he should be receiving support.
I hope that this helps. Please check back again soon and keep in touch.
Kind regards,
Helen :)
This we know the earth does not belong to man, man belongs to the earth. Man did not weave the web of life, he is merely a strand in it. Whatever he does to the web, he does to himself.
Helen
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Posts: 384
Joined: Thu Apr 22, 2004 7:31 pm
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Postby Guest_sarah » Thu Apr 29, 2004 12:24 pm

Helen,
Thankyou for your advice regarding Jordie, I found it really helpful. I have been back in touch with the child specialist that saw him last year and his secretary was very undertsanding and has arranged for Jordie to be seen next week. I am also having a meeting with his teacher today, who is going to write down all of Jordies problems, for me to take with me to the appointment. Hopefully, we might be getting somewhere at last.
Thankyou
Sarah.
Guest_sarah
 

Postby Helen » Thu Apr 29, 2004 3:09 pm

Hello Sarah,
Hope all goes well when Jordie sees the specialist, next week. Keep in touch
All the very best,
Helen :)
This we know the earth does not belong to man, man belongs to the earth. Man did not weave the web of life, he is merely a strand in it. Whatever he does to the web, he does to himself.
Helen
Mega Poster
 
Posts: 384
Joined: Thu Apr 22, 2004 7:31 pm
Location: Milton Keynes, Bucks


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