Need help in the USA

Chat with others about dyspraxia and share your experiences.

Need help in the USA

Postby mrobservant » Sat Apr 23, 2011 3:43 am

I notice that most people here are from the UK...
I feel like the resources and awareness of dyspraxia
seems to be limited to the UK and some other countries besides
the United States...

What should I do if I'm in the United States? Are physicians aware of
dyspraxia in the United States? I have a good suspicion I have dyspraxia
but am not sure what to do...
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Re: Need help in the USA

Postby Kirbster12 » Sat Apr 23, 2011 7:55 am

Well, I don't live in the USA, but I know a few people on this forum who do. If you're in the USA, rather than being diagnosed with dyspraia, you might be diagnosed with NVLD (non-verbal learning disorder), which is basically the same as Dyspaia. There are also links between NVLD and Asperger's Syndrome (if you want more info on AS, I'd suggest talking to Steph or Vicky (parnassus))

Hope you find this helpful!!
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Re: Need help in the USA

Postby mrobservant » Sat Apr 23, 2011 11:27 pm

Thanks.. I'll talk to them on this forum...
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Re: Need help in the USA

Postby mrobservant » Sat Apr 23, 2011 11:38 pm

I have question... what would be the best way to talk to your doctor about dyspraxia?
Are there any specialists that the doctor should definitely ask for when it comes to dyspraxia?
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Re: Need help in the USA

Postby carebear15 » Thu Apr 28, 2011 11:48 am

I am from the usa.
I live in Indianapolis,IN

there is limited resources in usa. i know that for sure.

soon i will be seeing a ot therapist for sensory intergration disorder.
OT=Occupational therapy

I have alot of special needs.

I also have cerebral palsy which affects my legs and they said i will never be able to drive and i can see that.
I have mild spastic diplegic cerebral palsy.
I asked a OT it been like more than 4 years ago if i have dyspraxia and the OT said i might but she doesn't test for that. Somebody else tests for that but never got offical diagnosis of that but June or JUly orthopedic diagnosed me with Cerebral palsy.

I play softball w/ kids and young adults with physical and mental disabilities.
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Re: Need help in the USA

Postby justme6565 » Sun May 01, 2011 3:06 am

I'm from the US as well! I was diagnosed with DCD, rather than dyspraxia, and you're right, no one has heard of dyspraxia here, which can be a bit annoying.

I'm one of those rare cases when dyspraxia (and mild dyspraxia, at that) is my only diagnosis, so my personal needs as far as resources is limited, but when I was younger, I did some PT and OT to work on coordination.

The main problem I had was trying to get accomadations on the SATs, which I eventually did. What my doctor ended up doing was diagnosing me with Dysgraphia in addition to Dyspraxia, even though Dysgraphia is generally included in the dyspraxia diagnosis in the first place, simply because the CollegeBoard had heard of Dysgraphia but not Dyspraxia.

Another thing you may want to check out is Dyspraxia Foundation USA (http://www.dyspraxiausa.org/) They're not very well-known yet, but they're growing on the radar!!!! I think the website might have some resources as well!!!

Hope this helps!!!
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Re: Need help in the USA

Postby mrobservant » Tue May 03, 2011 3:43 am

YAY! Someone from the United States!

I'll be sure to add you justme6565 :).

I feel like Dyspraxia is such a hidden condition...I actually do very well in my school because I have excellent long term memory skills so I'm really good with math procedures because they are so meticulous, but I'm very disorganized in my thinking when it comes to thinking that I'm pretty bad with essays Unless I'm given lots of time to complete it.

I think navigating the U.S health care system to get help with dyspraxia might be different from the UK.
I'll need to spend time figuring out how to get help...
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