Chat with others about dyspraxia and share your experiences.
Mon Jun 20, 2011 7:16 pm
Well i had my assessment today and apparently i am just different
The neurologist as my mum questions about my childhood and then he asked me about stuff i find difficult and then he did some test with reflexes.
But after all this he just concluded i wasn't although he told my mum that i should of been tested at a younger age by the difficulties she explained and said that there were some weird movements in my legs but said i could walk fine, although many people comment on the weirdness of my walk.
A thing i also didn't get was that he never asked anything about any of the mental side of things which looking online i fit into many of the categories so do i give up now or try again?
Tue Jun 21, 2011 10:12 am
It is possible that, over time, you have developed coping strategies and so don't meet the criteria for dyspraxia as your coordination has improved. By mental side, do you mean symptoms such as a poor short term memory? I think Remus on here had a similar experience to you (I hope he doesn't mind me saying that!) in that the neurologist said he didn't fit the profile for dyspraxia but he still struggles with memory and sequencing. He might be able to offer you some more advice.
Wed Jun 22, 2011 1:53 pm
Ah really thanks i may ask them if they don't mind:)
and yeah by sounds of it thats what the neurologist was getting at cause he told my mum i should of been tested when i was five, though i think he'd change his mind if he saw me playing a ball game or in the workshop uni i'm the only man that can mess up filing that got me some stick
And i did not accidentally make a new post instead of pressing reply just now at all i'm so useless lol
Sun Jun 26, 2011 6:05 pm
I've seen several neurologists about chronic illness.
I don't understand how they would diagnose dyspraxia. They tried to say that my symptoms for my illness are in my head..much more profound symptoms than my initialy dyspraxia. They ignored bits about my dyspraxia.
I think neurologists are useless frankly.
Have you thought about seeing an educational psychologist for a full learning profile?
Mon Jun 27, 2011 7:57 am
I'm sorry you're having such a bad experience with your neurologist, Spoon.
My own was fantastic. I saw a consultant paediatric neurologist when I was fifteen or sixteen, at the recommendation of the clinical psychologist who diagnosed me with dyspraxia. The CP wanted me to have an MRI to establish that I didn't have brain damage or a degenerative neurological condition that would show up. The neurologist was very thorough and reassuring. In addition to the MRI, she conducted some other assessments of her own - making me walk, jump, and run; checking my reflexes; and asking me to draw various shapes. She took a full developmental history too, and I had a blood test to rule out the possibility of Fragile X Syndrome. In the end she wrote a very full report corrobating the psychologist's findings, and adding that I should be assessed for autism as in her view the developmental history and my behaviour indicated ASD.
One thing that I did notice about the tests she used is that they would probably only detect very obvious co-ordination and balance problems. I walk with an odd gait, when I run my arms flap about wildly, I can't perform simple balancing tests, and the shapes she asked me to draw (especially the clock face) were impossible for me. I know other dyspraxics who could have done all those things, but that doesn't mean they don't have difficulties in their daily life. A neurological assessment is perhaps not so good for people's whose difficulties don't show up like that.
Tue Jun 28, 2011 9:49 pm
Hello Scott. Like Steph said, I had very similar experience to you when I had my assessment. He asked me a few questions and then he got me doing some reflexes and walking in a straight line which is stuff I can do. As a child, I was really clumsy, falling over, breaking things etc but as I got older, the physical symptoms improved vastly and it's more the mental symptoms I have trouble with such as poor memory, organisation skills, taking orders etc and the fine motor skills like tying laces, using knives and forks, catching a ball etc which the neurologist I saw didn't focus on at all and basically said there was nothing wrong with me which I found quite insulting. I should have said to him throw a ball at me or ask me to carry a tray of water or something like that and then he would see. I think if your dyspraxia is only mild and you are a older person, it makes it a lot more harder for diagnosis.
Good luck with it though if you decide to try again and see another specialist, I hope it goes well for you. For me, at 19 now, I'm not sure whether I'm going to try again. My doctor was really rude about it afterwards, he thought it was a complete waste of time and I'm thinking what difference would it make now but still, it would help me out.
Mon Nov 14, 2011 6:17 pm
I asked my gp for a referal and he hadn't heard of dyspraxia and didn't even know u could get a diagnosis on the nhs, so that wasn't the most helpful
. My school don't have the funds to refer me and my parents don't want to pay for a private assessment. I think I've pretty much cut of all my options here but does anyone know if you can get a diagnosis on the nhs that doesn't rely on your gp being compatant with special needs
Tue Nov 15, 2011 12:56 pm
Neurologists have a tricky job. The brain is not as well understood as many people think yet since it's quite a new field of medicine (compared to other feilds).
The one I saw reckoned my "twitch" was some kind of complicated tick because my blood contents and brain structure wer both fine and it gets worse when I'm tired, stressed, nervous etc
My boyfriend has since slept near me at sleepovers/uni trips where everyone's stuck on the floor/etc a couple of times, and he disagrees with this diagnosis on the basis that it's far worse when I'm asleep (apparently I get whole limbs jerking, which probably explains why I seem to wake up with mysterious muscle injuries more often than most people).
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